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posted Dec 18, 2012, 8:56 PM by LC Kapse   [ updated Dec 19, 2012, 3:52 AM ]

Inauguration of Primary Immunodeficiency Patients’ Welfare Society was held on December 9th, 2012 at “Yavanika” Auditorium, Nrupatunga Road, Bangalore-560001. The dignitaries present on the Dias were:


Dr Surjit Singh; MD; DCH (London); FAMS; FRCPCH (London) Prof. of Paediatric immunology from PGIMER, Chandigarh. He is the Pioneer in the field of Immunology.


Dr Parameshwara, a renowned physician and a cardiologist. He is a former president of Indian Medical Association and Association of Physicians in India. He is a presidential awardee in 1993 & Bharatharathna Sir M Vishweshvaraiah Award in the year 2001.


Mr. Prabhakar Reddy; He is a renowned developer and educationalist and a Well Known philanthropist. Founder chairman of sadguru sainath international school and Sai Realtors.


Dr. Ranjeet S. Ajmani is Biomedical Engineer from IIT, Mumbai and Chief Executive Officer of PlasmaGen BioSciences, Bangalore. He continued research at National Institute of Health (NIH) and Johns Hopkins Medical Institutions in USA.


A B Patil, President of our Society. He is a designated senior counsel. He is been awarded by president of India for his efficient work.


Ms Rama N S, CEO of Electronis City Industries Association (ELCIA).


       The society was inaugurated by Dr Surjit Singh and website of the societywas also inaugurated by him. In the Inaugural speech of Dr Surjit Singh he gave an integrated view on Primary Immunodeficiency and the remedies available. He informed that one person in a population of Ten thousand (1:10,000) will have this disorder but more than 99% of the cases go undiagnosed or misdiagnosed, which is due to lack of awareness among the general public and also medical fraternity. For most of the PID cases IVIG (Intravenous immunoglobulin) Infusion therapy is the sole working treatment. As IVIG being a blood plasma product it is very costly and out of reach for even upper middle class families. Hence most of the diagnosed children also will eventually die. In Europe and other developed countries the concerned government bear the cost of medication, hence the families of the PID patients are not burdened but in India it’s a grim situation with nobody to care for such patients. The state governments have to gear up to create separate funds for this subject and the corporates, philanthropists & society at large have to put their act together and take up the responsibility. He made a heart touching Bangalore Declaration saying

    May we all pledge that:

•      No child with PID in India will suffer because of lack of funds

•      These families will get all the support that they require.


In the Presidential address Shri A B Patil expressed his surprise that Karnataka Government has imposed VAT on IVIg which is internationally categorized as life saving drug and the central government has exempted import duty and other taxes, most of the states in India have also exempted VAT on the drug, hence Karnataka Government should withdraw the VAT on IVIg. Some of the state governments have set up corpus funds for treatment. He appealed to the Government of Karnataka to set aside 10crores  as a corpus, interest earned out of this to be used for  medication of Children. He urged the state Government to take the cause of PID patient’s on priority basis and our society will extend all its support for implementation of plans of the government.


It is time that the government should set up diagnosis & treatment facilities in all medical colleges, major government Hospitals & a separate Department with research centre dedicated for PID at Bangalore. 


Dr V Paramehswara expressed PID being not so common disorder, the diagnoses and treatment is not available easily. He hailed the formation of the society which is need of the hour and urged the governments, philanthropists, NGO’s etc to take up the remedial contribution towards the medication of PID afflicted children. He also released the Broucher of the Society.


Mr. Prabhakar Reddy hailed the objectives of the PIDPWS and expressed prominent persons in India should come forward for such noble causes to ease the suffering of the PID patients and their families. He took this opportunity to contribute by handing over a cheque of Rs 5, 00, 000/-(Rupees Five Lakhs) to the President of PIDPWS. He released the Pamphlet of 10 Warning Signs of PID.


Dr Ranjeet S Ajmani made an eye opening presentation on blood donation, separation of blood components required for treatment of various diseases and also blood plasma products which is useful for treatment of PID and hemophilia. The separated blood components are currently used in India but 50% of the blood plasma goes unutilized and this is the vital product in the preparation of IVIg needed by PID patients & factor 8 for the hemophilia patients. However he informed that this medicine is imported from china and Korea as there are no fractionation facilities of plasma in India. India is 15 years behind in this field and urged that the governments should take up the cause on war footing to catalyze the availability of indigenous blood plasma derivatives. 


Ms Rama N S accepted to take part in the activities of the society like increasing awareness of PIDs and also channelize the contribution needed by the society.


Thanking you,

Yours sincerely,

For Primary Immunodeficiency Patients’

Welfare Society®